Life for me started when I was ten days over my due date and I was born by emergency caesarean. I had swallowed lots of meconium and was not breathing - Daddy said I was purple.
I was whisked away from my Mummy & Daddy and taken to ICU at the RBWH by Ambulance where I remained until my lungs got stronger and I was finally able to breath by myself. At 8 months old, I was diagnosed with Cerebral Palsy - brain damage occurred due to lack of oxygen.
I am now 5 years old, and this year I started prep at a mainstream school where I love learning new things and playing with my classmates. Even though I cannot walk, talk or sit independently - I still live life to the fullest and give my best at whatever it is that I'm doing and always with my trademark winning smile.
I have to do a lot of different therapy work which involves regular Physiotherapy, Occupational & Speech therapy. I also must practice sitting and standing during the day, and sometimes do this at school so I can still interact with my classmates.
I can commando crawl and roll around to get where I want to go, but I also need a few more things to help me reach my potential. This includes a manual wheelchair for school and a power wheelchair so I can drive my self around by using a joystick control. I have been practising using a joystick on the computer. I also love being in a walker but I don't have one yet, I love it when I have the chance to be in one.
KidWalk by Leckey on trial from Aidacare
With only one small income, we are asking you our community if you can help our little 'HERO'. We need financial assistance for some Big Ticket Items. It's a massive ask but hopefully we can get some people around us and make this happen for my beautiful family.
Currently we cannot go anywhere together as a family in our small sedan vehicle, as it's not big enough to accommodate a wheelchair, in addition to a babies pram. When I get my power wheelchair this van will help my Mummy take me to school and to my therapy appointments. I'm getting a bit heavy for my Mummy so this van has an electric ramp so I can drive my chair in and sit next to my baby sister whilst keeping me safe.
A powerchair not only helps with my motor skills but will provide me with the independence I need in life. At the moment I'm still in a modified toddlers stroller and sometimes the other kids treat me like I'm still a baby - even though I am a big boy now.
Just because I need a wheelchair to get around, it doesn't mean I don't strive to walk one day - so I also need a special walker which helps me practise standing, walking and it helps my little hips and legs grow properly. This is called a kidwalk and has cool glowing lights in its wheels. I would love to have a kidwalk of my own so I can walk to the playground and walk my dog around my neighbourhood like the other kids do.
I have a new baby sister, Ariana, and she has already given me a precious gift - we collected special cells & cord blood when she was born and these cells may help me in the future. The doctors say it is very expensive and only done overseas at present but it still gives me great hope!